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Sunflowers Children’s Action Group

Sunflowers Children’s Action Group

We are a small volunteer group who create activities & events for local life-limited children.

We need your help to ensure children like Corey can continue to enjoy activities that can cater for his needs. Di, Corey's mum tell us,"Corey is now 9 years old, and has been diagnosed with type 1 diabetes since the age of 3.5 years old. Six months later he became a "Sunflower." Although diabetes does not stop Corey from many activities, he requires constant management of his blood sugars. If he went low (hypo), he would have to sit still and treat with sugar, until his levels came back to a safe range. A knock on effect of his diagnosis has also caused another auto immune condition to occur, having being diagnosed with coeliac disease at age 5 years old. This further limits him, due to a strict gluten free diet, having to prepare food in advance and check plans for catering. It adds additional stress to leaving the home. Sunflowers have done so, so much for our family. We feel fully included in everything, and have made some firm friendships along the way. The community spirit is perfect, and we feel privileged to be a part of such a wonderful charity."If you would like to make a difference to our local childen with life-limiting conditions, I'd love to hear from you: joanne@sunflowers.org.uk ... See MoreSee Less
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Some time ago we applied for some funding to enable some events to take place in North Lincolnshire, where Ongo are based. Today, Derek, one of our volunteers and trustees attended a presentation afternoon. We are so pleased that Ongo have granted £1500 which will be providing our children with two play sessions at Play Avenue in June (providing refreshments for everyone in the exclusive sessions) and also towards a Bowling event at a later date. On behalf of our families, we would like to thank them for sponsoring these events. Either side of Derek are Kevin and Jan from Ongo. ... See MoreSee Less
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"Hattie was diagnosed with spinal muscular atrophy 19 months and our lives completely changed from that day forward", says Mum, Molly. "She now receives treatment via a lumber-puncture every 4 months and has regular physio each week." Hattie loves the chocolate making activity and getting together with her Sunflowers friends. Please support us. ... See MoreSee Less
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If you haven't got your tickets yet, we have very few left available for our Ball at Forest Pines Hotel on 5th October 2024.If you are a local business, and would like to support our work for children with life-limiting and life-threatenigng conditions. We are specifically looking for the donation of raffle prizes and auction items, table decorations, and more.This will be our biggest fundraiser of the year and all funds from it will help to create special Christmas memories for some incredibly deserving families. Please get in touch for more information. ... See MoreSee Less
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Lucy is 7, with a complex medical history. She suffered a grade 4 bleed to the brain as a baby. As a result, Lucy has Cerebral Palsy, is unable to walk, and has epilepsy. but she loves our activities!

Please help us to do more for children like Lucy: joanne@sunflowers.org.uk

We have very few places available for the @sunflowerslocal Ball on 5th October - if you'd like to join us please get in touch. Sponsorship opportunities available. Fundraising to create events for children with life-limiting conditions.

It’s back to school day, here are some of our children who enjoyed our Easter activities over the holidays thanks to the support & generosity of local people and businesses.

We’re a registered charity run by volunteers, no. 1186308, for children with life-limiting conditions.

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Another 30 or so of our Sunflowers children enjoying a fun exercise session. It’s hard to believe these children all have challenging medical conditions, they are all so very inspirational!

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British Citizen Awards

Joanne Wright, the Founder of Sunflowers Children’s Action Group

We are delighted to be able to bring you some news that we have had to keep under our hats for a while, but today we can finally tell you that Joanne Wright, the founder of Sunflowers Children’s Action Group, has been selected to receive the BCAh for Healthcare in the forthcoming ‘British Citizen Awards on 18th January 2024.

The Worshipful, The Mayor of the Borough of Grimsby, Cllr Ian Lindley will present Joanne with a certificate and Medal on that date.

Joanne was nominated by Melanie Batty, whose son, Jax has benefitted from the charity’s work in the past.

The BCA, often dubbed ‘The People’s Honours’, is now in its 10th year and recognises exceptional selfless individuals who may often be overlooked. Presentations are made twice annually at a Ceremony at the Palace of Westminster and are limited to a maximum of 30 per ceremony. However, Joanne has chosen to have her award presented locally.

The insertion in the 2024 Roll of Honour will state:

“Joanne Wright BCAh

Lincolnshire

In 2019, Joanne set up the charity ‘Sunflowers Children’s Action Group’ based in Grimsby after spotting a gap in the provision of support across areas of Lincolnshire and Yorkshire for children with life-limiting illnesses. The group creates special, inclusive events and activities to create lasting memories for these children and their families.

Many children with life-limiting illnesses face social exclusion, missing out on parties and special events, whilst enduring hospitalisations, harsh treatments and forced school absences. Joanne created Sunflowers to ensure children with these conditions do not miss out. Shortly after the group was created, the pandemic hit, and Joanne and a handful of unpaid volunteers continued to make a difference during lockdown. They delivered hundreds of gift parcels and online events to children that were shielding and as they couldn’t get together as a group.

Joanne works with local hospitals, hospices, and outreach services to help make a difference to these children. Sunflowers now comprises of over 125 families and activities are planned throughout the year to improve mental and physical health, which also offer family-to-family opportunities of support. Whilst running the Sunflowers charity, Joanne also offers full-time support to her own inspirational daughter.”

Joanne says, “I am so honoured to be considered worthy of this Honour, and am particularly touched that the nomination came from one of our parents. However, the Sunflowers story isn’t really about me and where it started. It’s about teamwork, community and support and where we are now. No one individual is more passionate or dedicated than another or worthy of individual recognition – the trustees of this charity all work so hard in the background as do the supporters, volunteers and families, to make Sunflowers what it is. In accepting this Honour, I share it with everyone involved.”

Summer Events

Fairy Sleepover

Baking with The Cake Lady

Duffy’s Chocolate Making

Eclipse Gymnasium

The Trin Holiday Club

Mayor’s Charity of the year

Cllr Ian Lindley, Mayor of North East Lincolnshire in 2023-2024

Congratulations to Councillor Ian Lindley who has this evening been declared the new Mayor of North East Lincolnshire. We are proud beyond measure to have been chosen as one of the Mayor’s chosen charities for the year and thank him for the difference his support will make to our families.

Photo: Mr Mayor, Cllr Ian Lindley (left) and Sunflowers CAG trustee, Derek McAndrew at Grimsby Town Hall this evening.

Superhero Sleepover

Some of our children and their families had the opportunity to experience a Superhero Sleepover with Luxx Events at the Hampton by Hilton, Humberside Airport.

At the Superhero Academy, the children had the opportunity to learn poses plus web-shooting and web bombs with Spidey, superhero landing and circuits with Widow and target practice with The Captain and The Iron Legend. Over a delicious buffet breakfast on the Saturday morning, the children received Superhero Academy certificates and team photographs from Luxx Events.

The families have sent us amazing feedback about the even. With all you can eat buffet, overnight stay with breakfast and fabulous entertainment, what’s not to love! Here are some wonderful photos from the event.

Councillor Peter Clark

Cllr Peter Clark, Mayor of North Lincolnshire in 2021-2022

Sunflowers Children’s Action Group is entirely reliant on support from the local community to help make a difference to our registered children who suffer from life limiting and/or life threatening conditions. We are all volunteers, so aside from minimal operating overheads, all monies raised are used to make a difference. So, we have to give our huge thanks to Cllr Peter Clark, Mayor of North Lincolnshire in 2021-2022 for his outstanding efforts on our behalf. We are now in receipt of all the funds he raised for us during his mayoral year, which add up to a fantastic…..drum roll…… £20495.18. Absolutely incredible! Cllr Clark has been the mayor a record three times, and also previously supported the children’s charity Joanne was involved with, then raising £76057.61 over the two previous terms. That’s almost £100,000! Some people may question the role of a mayor in a community, but this is by far the greatest gift that anyone can give – their time, energy and efforts being given to help those who need it most. We simply can’t thank Cllr Clark enough for this incredible donation. Cllr Clark commented, ““I’ve had the privilege of seeing the difference that this fundraising has made to our local families. Clearly, it has been a very difficult time for charities in general, so I am very proud to have been able to support them in some small way.”

Santa’s Special Christmas Parties 2021

We held our second Christmas party in December 2021 alongside, a week later a virtual event for the families that couldn’t attend in person. Santa took time out of his busy schedule to visit our children and whether it was in person or via the computer special memories were created.

Past Events

As lockdowns continued during 2020 and 2021 we carried on supporting our families with activity boxes and virtual entertainment events to

When the first lockdown struck in 2020, we realised there was a need to support our families more than ever, not go to ground.

Gift boxes with suitable toys and sweets were sent to every registered child whose family requested one. Sunflower growing packs were sent a few weeks later and Think2Speak crayons and colouring books were sent out another couple of weeks after that. A final round of lock-down gifts were kindly and very generously sponsored by an organisation called ‘We Are All Making a Difference’ who donated £5000!

Thanks to sponsorship, we have sent out over 80 wonderful gift boxes to deserving, brave and shielded children.

Despite the many obstacles we have faced this year, we still managed to provide our children with special parcels to help put smiles on their faces.

Click the button below to read the full article on Grimsby Live:
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Santa’s Special Christmas Party 2019

Santa’s Special Christmas Party 2019 took place at Forest Pines Hotel – with around 200 guests and Santa joining us specially from Lapland! Lots of photos are available to view on our Facebook page and here is a short video of the party.

Although this year will be quite different, Santa’s Virtual Christmas Party is going to be incredibly special.

Fundraising

Even through the difficult last few months, there has been some fantastic fund raising going on in aid of Sunflowers. Chris Sheasby, Nathaniel’s triple Challenge, Shaun Ellis 10k run and Emily’s sponsored haircut donation.

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